Resources

Please find below the resources from the day. If you have any difficulty finding the resource that you are looking for, please contact cop@mndassociation.org and we will do our best to help.

Safeguarding resources:

Supporting genomic information sharing for families - a survey for healthcare professionals:

The eligibility for this survey is any clinicians employed in the UK NHS, from a range of professional backgrounds with involvement in genomic testing (nurses, consultants, resident doctors, genetic counsellors etc.).

Competencies:

A practical competency framework to support the knowledge, skills and behaviours health and social care professionals may need when supporting people affected by Motor Neurone Disease (MND).

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